Expert's Corner

 

 

Ask the Founder


VBF Announces "Ask The VBF Founder." Linda Rozell-Shannon is the leading lay expert (non doctor) in the world on the subject of vascular birthmarks.

 

Babies with Birthmarks™

Our newest program - guidelines for physicians to follow to diagnose and treat vascular birthmarks with the earliest intervention.

Recent Medical Papers and Research

New Research Out of Boston


Dynamic Cooling Paper by Dr. Nelson and Wangcun Jia


Arterio-venous Malformations Powerpoint Presentation


PWS paper by Dr. Mihm and L. Rozell-Shannon


SWS Glaucoma Facts by L. Rozell-Shannon and Dr. Fay

Test for Birthmarks

Psychosocial and Emotional Issues for Individuals with a Port Wine Stain

Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

Ulcer Care and Treatment (pdf)

The Vascular Birthmarks Foundation
along with the

Present the 2007 Port Wine Stain and Vascular Birthmarks Conference

2007 PWS ConferenceThe Vascular Birthmarks Foundation (VBF) is very excited to announce that the 2007 Port Wine Stain and Vascular Birthmarks Conference will be held on Friday, November 2nd and Saturday November 3rd. This conference will take place at the Beckman Laser Institute in Irvine, California and at The Island Hotel minutes away in Newport Beach.

Dr. J. Stuart Nelson, along with the Beckman Laser Institute will be co-sponsors of this year’s conference. The theme is Research Holds the Key.

This conference will be unlike any other conference because the first 100 families that register will receive lodging at a significantly discounted rate for the first night. The first 50 families of those 100 families will receive that same discounted rate for the second night also. The meals that are included are the welcome reception on Friday night, and breakfast and lunch on Saturday. Lodging will be at The Island Hotel www.theislandhotel.com. In addition, the conference fee is only $50 per family and the clinic fee is only $50 per family. Anyone who cannot pay the clinic or conference fee can request that the fees be waived. A $25 deposit is required for each family registering for the conference and this fee cannot be waived. This deposit is non-refundable.

On Friday night, the keynote address will focus on the latest research findings. Dr. Nelson and Dr. Martin Mihm will speak regarding some exciting news about the treatment of port wine stains. In addition, Dr. Milton Waner and Dr. Lou Fink will be presenting on their research concerning hemangiomas, which is also exciting news. Another first will be a presentation on Saturday by Linda Rozell-Shannon (VBF President and Founder). She will be presenting the results from her PhD study concerning how families are impacted by hemangiomas. Breakout sessions on Friday evening will be available to patients and their families. Drs. Nelson and Mihm will facilitate the Port Wine Stain team, Dr. Waner will facilitate the Hemangioma team, Dr. Alex Berenstein will facilitate the Vascular Malformations team, and Dr. Kamiab Delfanian and Dr. Anne Comi will facilitate the Syndrome team.

On Saturday, speakers and topics include:

  • Dr. Nelson – Current trends in the diagnosis and treatment of port wine stains
  • Dr. Mihm – Histopathology of port wine stains
  • Dr. Waner - Latest developments in the diagnosis and management of hemangiomas
  • Dr. Comi – New developments in Sturge-Weber Syndrome
  • Dr. Delfanian – Managing Klippel-Trenaunay Syndrome
  • Dr. Berenstein – Treating vascular malformations
  • Linda Rozell-Shannon – Assessing the burden of hemangiomas on the family system


There will be four teams for the clinic sessions on Saturday:

· Team A – Port Wine Stains – Drs. Nelson and Mihm
· Team B – Hemangiomas – Dr. Waner
· Team C – Sturge-Weber/Klippel-Trenaunay Syndromes – Drs. Comi and Delfanian
· Team D – Vascular Malformations - Dr. Berenstein

The tentative agenda for the weekend includes:

Friday, November 2, 2007

5:00pm-6:30pm Early Registration and Welcome Reception – The Island Hotel

6:30pm-7:00pm Opening Remarks – Linda Rozell-Shannon and Dr. Nelson

7:00pm-7:20pm Keynote Address – Drs. Nelson and Mihm

7:20pm-7:40pm Latest Research Concerning Hemangiomas – Drs. Waner and Fink

7:45pm-9:00pm Breakout Sessions

9:00pm-10:00pm VBF Annual Board Meeting

Saturday, November 3, 2007

7:30am-8:30am Early Registration. A complimentary continental breakfast will be served at this time.

8:00am-8:30am Daycare Registrations. (Note: The Beckman Laser Institute will provide daycare services at no charge to the families)

8:30am-12:10pm Conference – Agenda to be published at a later date, when it is confirmed

12:10pm-1:00pm Lunch Provided

1:00pm-6:00pm Clinic Appointments at the Beckman Laser Institute (Note: Each family will be given 10-15 minute clinic appointment with a team of birthmark specialists. Please bring films, medical reports and photos to the appointment.)

6pm End of Conference

Important Note: It is very important that you register as early as possible. The first 100 families to register and to send a $25 registration fee will be guaranteed lodging at a discounted rate for the first night (one room) and meals (welcome reception on Friday, and breakfast and lunch on Saturday). The first 50 families of those 100 will be guaranteed lodging for the second night also at a discounted rate. The registration form includes more detail. We will be collecting names of all families that register beyond the initial registrants and will be attempting to get additional funding to cover all meals/lodging. However, at this time, there is only enough funding to pay for those families that register early. The hotel will also offer an extended discounted rate for three days prior to the conference and three days after. These dates include October 30, 31, November 1, and November 4, 5, and 6.

Food is easily accessible at the hotel and at nearby restaurants for all families who wish to attend, but who do not qualify for early registration benefits. No one will be turned away from attending the conference and/or clinic, but everyone who wishes to attend must register and pay a $25 registration fee. The early registrants will be notified by mail that meals and lodging are included. When the early registrant spaces are filled, a notification will be posted on the website. Please visit www.birthmark.org for updates or call Paige Salvador at 856-234-2126.

You may download the registration form from the link below and send it in with your $25 registration fee as soon as possible to VBF, PO Box 106, Latham, NY 12110. Registrations will not be taken over the phone unless you are using a credit card to register. To register by phone with a credit card, contact Paige Salvador, VBF Executive Director, at 856-234-2126. If you have any questions, please e-mail Paige at BASPASTS@cs.com.

2007 Conference Registration Form

 

Parent's
Corner



Information for Parents

DOA Logo
Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness


Good Search

What if the VBF earned a penny every time you searched the Internet? Now it can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social mission... every time you use GoodSearch, money is generated to support the mission of VBF. Just go to www.goodsearch.com and be sure to enter the Vascular Birthmarks Foundation as the charity you want to support. The more people who use this site, the more money we'll earn so please spread the word! Go to http://www.goodsearch.com

If you think your child has a hemangioma Click Here...
hemangioma
If you think you or your child has a port wine stain Click Here...
Before and after of port wine stain
If you think you or your child has a venous malformation Click Here...
Before and after of venous malformation

VBF Chapters and Partners

VBF

VBF Europe

VBF Latin American

VBF New Zealand

VBF Australia

VBF India

VBF Africa

VBF Asia

Sturge-Weber Syndrome Community

SWSC-Canada

Partners

Anomalie Vasculaire Site for French speakers worldwide, and friend of VBF that offers support and information about vascular birthmarks



Publications for Parents:

  • VBF Vascular Birthmarks Brochure - Download and Print - A comprehensive brochure describing all vascular birthmark types, syndromes and treatment options. To print, click here (you will need the Acrobat Reader to view and print this document).
  • Doctor Visit Survey Have you been seen by a doctor to assess a vascular birthmark? Please click here and complete our survey. This survey will be used to provide feedback to the doctors about the information and treatment they provide to families affected by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, VBF Director of Information Services, 17309 NE 29th St., Vancourver, WA 98682.
  • Before you visit, email, or speak to a birthmark specialist, be sure to read our Checklist for Parents!
  • Dr. Rosen's Vascular Birthmark Information for Parents
  • Simple things you can do to manage KTS (Dr. Delfanian and Linda Shannon)

You will need Adobe's Acrobat Reader to open and print the pdf documents. If you do not already have it installed, you can find it here.

You will need Microsoft's Word to open and print the Word Documents.

RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS